Your Voice Can Help Change Epilepsy Care
The National Plan for Epilepsy Act is a bipartisan bill introduced and supported by both Democratic and Republican lawmakers. It would establish a coordinated national strategy to improve epilepsy research, diagnosis, treatment, care, and collaboration across federal agencies and the epilepsy community.
This is not simply a funding issue. It is a systems issue. Implementing a national plan can strengthen accountability, reduce fragmentation, and accelerate meaningful, patient-centered care for people and families affected by epilepsy.
National Plan for Epilepsy Act
Contact Your Representatives
Enter your ZIP code or select your state to find your elected officials and access their official email or contact forms. Even a brief message can help show lawmakers that coordinated, patient-centered epilepsy care matters to the families they represent.
Your voice matters. Contact your members of Congress and ask them to support and co-sponsor the National Plan for Epilepsy Act, H.R. 1189 and S. 494.
Use our prepared letter as written, or personalize it with your own experience:
Real People
·
Real Stories
·
Real Change
·
Real People · Real Stories · Real Change ·
Share Your Story With Us. Help Drive Change.
-
First, complete the Participation Form with your contact information, your story, and a photo you would like us to consider using.
Once we receive your submission, we will send you a Consent and Media Release through DocuSign. After the signed release is returned, we will begin preparing your story for publication.
When the draft is complete, we will send you a proof to review. We ask that you respond within three calendar days to either approve the proof or request changes. Nothing will be published without your written approval.
-
Fill out the participation form to the right and upload a photo you are comfortable sharing with lawmakers
-
Share what you feel is most important about your or your family’s experience with epilepsy or seizures. You may include challenges with diagnosis, treatment, care coordination, medication access, emergency care, or the impact epilepsy has had on daily life.
There is no required format. Honest, personal stories are what matter most.
-
Yes. We will format your submission and send you a proof before it is published or shared.
You will have three days to request changes, corrections, or removal of information.
-
If we do not receive a response we will consider the proof not approved and will not be able to. to move forward with publication.
-
Approved stories may be included in Pediatric Care Advocates’ advocacy materials and shared with lawmakers, community leaders, advocacy organizations, or the public to demonstrate the real impact of gaps in epilepsy care.